Three letters – SMA – tell countless personal stories. Stories of resilience, as adults living with spinal muscular atrophy (SMA) navigate everyday life and overcome challenges to access care and treatment.
Whether through family support, peer networks, or a commitment to maintaining independence, there are many reasons to keep hope alive. The SMA care and treatment landscape has evolved significantly over time, with multiple disease modifying treatment options now available.. People living with SMA may be able to benefit from these treatment options, with outcomes shaped by each individual’s needs and goals. Whether achieving small improvements, major milestones, or stabilizing existing motor function, starting treatment as early as possible may help to prevent or slow down motor neuron loss.
Meet Adele, Christian, Gary, Judith, Simona, Luis and Theodoros. Each of them, living with SMA across different countries, share how they found the right treatment and how it transformed their daily lives and hopes for the future.
To learn more about available SMA treatments, consult a neuromuscular specialist or connect with a local patient organization. Take action. Be the change.