Ms Durhane Wong-Rieger President and CEO, Canadian Organization for Rare Disorders, Canada Advisory Council Chair
Durhane is the President and Chief Executive Officer of the Canadian Organization for Rare Disorders (CORD). She began working with CORD as a volunteer in 2006, during which she developed an Orphan Drug Policy and led an advocacy campaign to improve access to new therapies for rare diseases. Durhane has served on numerous health policy advisory committees and is a member of the Advisory Board of the Institute of Genetics, belonging to the Canadian Institutes of Health Research. She is also a member of the Patient Liaison Forum for the Canadian Agency for Drugs and Technologies in Health. Moreover, Durhane believes strongly in the value of international collaboration and serves on the Board of the International Alliance of Patients’ Organizations, acting as Chair in 2011-2013.