Stories related to Patients

Personalised healthcare and the complexity of data sharing

Mark Lee & Tim Jaeger discuss the shifting the paradigm of transparency and patient privacy when it comes to data

Living with NMOSD: Advice from a working mother

Ana has neuromyelitis optica spectrum disorder (NMOSD) but has learnt to understand her condition and remain positive. She shares her story here

Learning about the science behind NMOSD

Understanding neuromyelitis optica spectrum disorder (NMOSD) and the role of interleukin-6 in the inflammation that occurs in people with NMOSD

Liver cancer

HCC is known as a ‘silent killer’ as the symptoms often appear too late for curative treatments. Learn more about the signs, symptoms and risk factors.

Tip of the iceberg: the hidden impact of Alzheimer’s disease

Caring for people with Alzheimer’s disease has a huge economic and emotional impact. Learn about the intangible costs and Freeha’s experience with her father.

When patients are fully in control of their healthcare data

Partnering directly with patients opens up exciting ways to transparently share data and gain access to some of the richest datasets available to researchers.

What patients in clinical trials should know about their data

Patients can be at risk of sharing too much, especially in Rare diseases. How can patient advocates support innovation but also defend patient privacy?

Women’s health

No matter what stage of life or part of the world a woman is in, knowledge is power.

Just the other day, I realised I could open the fridge again

Conversations with people with SMA and their families

Every Cancer Is Unique. Let’s Treat It That Way.

Every cancer is unique. Discover how genomic testing can reveal mutations in a cancer tumour that can guide personalised treatment decisions.

Healthy liver, healthy lives

The liver is your body’s chemical processing plant, a powerhouse crucial to remove toxins; but liver cancer is on the rise. Learn what we can do to change this.

Taking control of IPF: A tale of two perspectives

Rainer, who was diagnosed with idiopathic pulmonary fibrosis (IPF) after two stressful years of uncertainty, tells his story on living with IPF alongside expert advice from his doctor.

Roche results for half-year 2019

When everyday counts, data makes a meaningful difference for patients

Shaping the future of cancer care

Combining science, partnerships and analytics in the fight against cancer.

Improving the supply chain

Gaps in the supply chain resulted in cost mark-ups putting modern cancer therapies out of reach for patients in sub-Saharan Africa.

Our philanthropic journey

Over 100 years of partnerships to make a sustainable difference for communities in which we operate and beyond.

A journey towards mutual understanding in IBD

A look at the importance of patient-physician communication in ulcerative colitis and Crohn’s disease, and how we are developing digital tools to help address this.

Uncovering stories of progression from the MS community

The MS community shares what they want others to know about the often invisible symptoms of MS, as well as their journey to managing its hidden impact.

Piecing together the puzzle of IBD

Read how we are approaching personalised healthcare in IBD to support individualised care for people living with ulcerative colitis and Crohn’s disease.

Inflammatory bowel diseases

We aim to provide the most meaningful outcomes for patients with ulcerative colitis and Crohn’s disease. Learn about the current initiatives in IBD care.

What is IBD?

IBD is a group of complex, chronic conditions, characterised by prolonged inflammation of the gastrointestinal tract, which can have a long-term impact on a patient's quality of life.

Roche's personalised approach in IBD

Compare today's approach in IBD with the ideal future

Master the art of detection for skin cancer

Take a tour of our virtual gallery and learn to master the art of detection for skin cancer. It could help you save lives.

Changing the colorectal cancer story

Two days after being admitted to hospital with stomach pains, Eve Bukowski woke up to the news we all fear.

Life with NMOSD: Staying who you are with a rare disease

“Do not take life for granted. Take every moment in.”

Roche in Neuroscience & Rare Disease: Preserving what makes people who they are

Our mission is rooted in our formula: follow the science to preserve what makes people who they are.

Fighting counterfeits to protect patients

For patients whose lives depend on prescription medicines, the consequences of counterfeiting are dramatic.

Shedding light on progression in MS

How Roche is paving the way for better understanding of MS disease progression and monitoring.

Reimagining digital health regulation

For timely access to technologies that improve health decisions, health authorities are rethinking regulations for the uniquely iterative world of software.

Measuring what matters

How Patient-Reported Outcomes are helping to redefine haemophilia care

Measuring what matters

How Patient-Reported Outcomes are helping to redefine haemophilia care

Small cell, big difference

Understanding what makes small cell lung cancer unique and what is being done to improve the lives of people with small cell lung cancer.

Global Access Program

According to the World Health Organization (WHO), there were 35 million people living with HIV around the world in 2012. That same year 2.5 million people became newly infected with HIV worldwide.

Exposing the impact of progression in multiple sclerosis

Pieter shares his experiences of progression in MS, and how virtual reality can help facilitate discussions about progression within the MS community.

The role of diagnostics in fertility and pregnancy

Learn more about advanced screening and diagnostics tests and their role in preconception and pregnancy.

Roche in rare diseases

Find out what makes a rare disease rare and who is affected.

Elevating the patient voice in Huntington’s disease

How patient partnership is shaping the future of research and clinical development for Huntington’s disease.

Staying active despite progression: Anat’s Story

Explore Anat’s powerful message of staying active despite her progression in multiple sclerosis.

About the importance of disease awareness

Four key factors need to be in place to successfully treat a patient, the first factor is disease awareness.

Medical software and the value of digital health

By connecting dots between patients, physicians, medical research and more, digital health provides data-driven results to support life-changing decisions.

Building bridges to improve the cancer patient journey

The role of an oncology nurse navigator requires a unique combination of skills, knowledge and compassion.

ForPatients

Developed in partnership with patients, ForPatients aims to support patients on their journey.

Lung cancer and me

From diagnosis to treatment, each lung cancer patient has their own unique journey.

A woman's right to know: HPV and cervical cancer

The HPV test came back positive – what now? Should women be worried? What should they do next?

The city cancer challenge

An initiative that aims to build a collective movement of cities across the globe to deliver better solutions on sustainable cancer treatment for all.

Unveiling triple-negative breast cancer

Lifting the curtain on an often overlooked disease.

Supporting people with MS: A nurse’s story

Learn how specialist MS nurse Anna Cunningham, helps people with MS manage their condition

Stolen memories

Diagnostic certainty contributes to the search for effective treatment

Confronting IPF together: Alberto and Maria’s story

Find out why Alberto now celebrates two birthdays – and why he and his wife Maria don’t take a single breath for granted.

Finding her way

Born with hepatitis, Adeline chose to face her diagnosis and define her future.

Addressing the lack of cancer care in Pakistan

The patient as partner

Empowered patients are redefining the healthcare environment on their own terms.

Our access to healthcare initiatives

Explore some of our access projects from around the globe.

Increasing access to healthcare

Groundbreaking advances in medical science are only meaningful when they reach the people who need them.

Increasing access to healthcare is a global challenge

Finding sustainable solutions to the barriers to healthcare can only be achieved through collaboration.

A mosaic of life after cancer

Stories of survival not only provide hope to cancer patients, but they also remind oncologists why they work so hard to find new treatments.

Improving access to hepatitis treatment in Egypt

Comprehensive access to cancer treatment in Dubai

A platform for supporting cancer patients in India

India does not have a centralised healthcare funding body and access to medicines is not universal.

Improving cancer care in Bosnia and Herzegovina

Relapsing multiple sclerosis: Unravelling the maze

Explore how the patient pathway for people living with relapsing MS has changed over the past 20 years.

Let’s talk fertility

Women and their bodies may have very different ideas about the right time to have a baby.

Progress in haemophilia: a personal perspective

The haemophilia community is united and strong. Find out more about the haemophilia community and progress being made in the field from Brian O’Mahony, Chief Executive of the Irish Haemophilia Society.

A pathway to hope for cancer patients

Barriers to accessing healthcare in Kenya include poor diagnosis and inadequate funding. Public-private partnerships aim for innovative and sustainable solutions.

Sustainability at Roche: Our impact

Engaging with stakeholders is crucial to create sustainable value. Stakeholder engagement enables us to jointly develop solutions.

Better together: Helping one million people with diabetes

Ask anybody with diabetes: managing it is time consuming, exhausting and very annoying.

Highlights Annual Report 2017

Read the incredible stories behind the numbers.

Bringing patient support to a rare disease

Learn how we are breaking down barriers that prevent patients from joining clinical trials for spinal muscular atrophy.

Making HIV testing accessible

The Global Access Programme makes HIV viral load tests and the early detection of infections in infants possible in countries that are most affected by the disease.

Living with MS: My Story

Felix, who lives with relapsing MS and Craig, who lives with primary progressive MS, talk about the impact of the disease on their daily lives.

About the importance of funding

Four key factors need to be in place to successfully treat a patient, with funding being the most controversial one.

About the importance of healthcare capacity

Healthcare capacity is one of four key factors that need to be in place to successfully treat a patient.

About the importance of diagnosis

Four key factors need to be in place to successfully treat a patient, with diagnosis being one of them.

Our approach to increase access to healthcare

Access to healthcare is a complex challenge. Four key factors need to be in place to improve access to quality healthcare.

Partnership to improve cancer care in Sudan

The partnership builds a cornerstone to fight breast and blood cancers by providing people access to innovative biotech medicines and diagnostic solutions.

Always trying to err on the side of drug safety

Keeping its medicines safe for the people who need them is at the core of our remit.

Giant cell arteritis - the hidden sight-stealer

Giant cell arteritis is a ‘silent’ yet dangerous disease of the immune system that can rob people of their sight.

Digital solutions supporting rheumatoid arthritis community

It has become natural for people to seek information or advice about their health online. Learn about three solutions we developed for the European RA community.

Every person is unique. So is every cancer.

Advances in genomics are helping physicians to understand patients’ unique cancer types and to identify whether targeted therapy options are available for them.

Ann’s story - what it feels like to live with IPF

More than three years after learning she has IPF, Ann still refuses to allow the disease to overshadow her life. Read about how she learned to live with IPF.

Mesothelioma: What could possibly link this rare cancer to the ill-fated Titanic?

What could possibly link this rare cancer to the ill-fated Titanic?

Primary progressive MS: Different perspectives

Dr. de Seze and Craig Milverton, who lives with primary progressive multiple sclerosis (PPMS), share their experiences managing and living with this form of MS.

Working through MS

The unpredictability of MS can greatly affect employment and career opportunities. Learn about the impact of MS on work life.

After years of uncertainty - a difficult diagnosis

Ann has idiopathic pulmonary fibrosis, a relentless condition which causes scarring of the lungs. This is the story of her search for answers, from initial symptoms to diagnosis.

Forms of multiple sclerosis: What are the similarities and differences?

The underlying biology of multiple sclerosis is similar for everyone, but its course and symptoms vary from person to person. Explore the similarities and differences between two forms of MS.

Lymphoma: Know the facts

Lymphoma is one of the most prevalent forms of blood cancer. Click on our interactive flashcards to find out some key facts on lymphoma we all should know.

Heart failure: the role of biomarkers in disease management

Heart failure can have a great impact on people’s live. Biomarkers can support physicians to make informed decisions as to the best course of care to patients.

Fighting viral hepatitis

Despite the burden it places on communities across the world, hepatitis appears to have been largely ignored as a public health concern

A little-known virus that can cause big problems

Most people can spend their entire lives not knowing they’ve been infected with CMV. But for transplant patients, this quiet invader can be life-threatening

Disease Progression Slideshow

MS disease progression is complicated and not always apparent. Learn what happens to the body in MS and how progression can be measured.

Improving outcomes for people with multiple sclerosis

The London School of Economics “International MultiPlE Sclerosis Study” explores the need for policy change and better outcomes for people with MS.

Life with MS: My inspiration

French visual artist, Dorothy Shoes, talks about her life and how MS inspires her work.

Facing unpredictability head on

MS patient advocate Shana, and her partner Leo, explain what it’s like to live with a disease that means no two days are the same.

Be a Melanoma Hero

Meet our Melanoma Heroes. They support those who have melanoma and take steps to prevent the disease, support their loved ones or lead the way to a cure.

Bladder cancer: the symptoms you shouldn’t ignore

One patient shares his experience being diagnosed with a disease he knew nothing about.

Protecting against progression

Dr. Traboulsee, University of British Columbia in Vancouver, discusses the importance of brain health and early treatment for people with multiple sclerosis.

The role of HPV in cervical cancer

Everything you need to know about HPV infections and the link between HPV and cervical cancer.

What is multiple sclerosis?

MS is usually thought of as a single disease, but its course and symptoms vary from person to person.

Giving a voice to women affected by haemophilia

Millions of women and girls are affected by bleeding disorders. Find out from Dr Danielle Nance about the importance of supporting women in the haemophilia community.

Facts about bladder cancer

Bladder cancer is one of the top ten most common cancers in the world.

Lung cancer

Approximately 1.8 million people develop lung cancer every year. Can new diagnostic tools deliver earlier diagnosis and smarter treatment choices?

A new strategy for cervical cancer prevention

Learn how new screening, triage and diagnostic tests help clinicians decide which women to treat for cervical cancer.

Tackling cancer in Kenya

Our partnership with the Beth Mugo Cancer Foundation is helping cancer patients in Kenya.

Our purpose

Who we are, what we do, and why we come to work each day.

World Cancer Day 2017: Improving access to cancer care

This World Cancer Day, we are reaffirming our commitment to accelerating progress in access to cancer treatment.

Access Accelerated: improving access to medicines for NCDs

Working together for a future where no one dies prematurely from a treatable preventable disease.

No woman needs to die from cervical cancer

Despite being highly preventable through screening,treatment and vaccination, cervical cancer remains one of the most common and deadly women’s cancer.

Melanoma Heroes

Meet our Melanoma Heroes. They support those who have melanoma and take steps to prevent the disease, support their loved ones or lead the way to a cure.

Buttons - daily enemies for people with rheumatoid arthritis

New clothing collection designed to overcoming issues that people with RA face when getting dressed.

Rheumatoid arthritis through the lens of an Slovenian artist

A photographer captures what it means to live with the consequences of rheumatoid arthritis.

8 things people with rheumatoid arthritis want you to know

Rheumatoid arthritis really affects people living with it. Here’s what they would like you to know about the disease.

Providing a helping hand for people with rheumatoid arthritis

A collaboration with the Brazilian patient advocacy group helps to improve the quality of life of people living with RA.

Life with rheumatoid arthritis through pictures and words

The three artists captured what living with the disease means to people with rheumatoid arthritis.

Working together to make a difference in breast cancer

Read about our efforts to improve the lives of breast cancer patients around the world, beyond the provision of medicines.

Joining forces to address a major public health challenge

Antimicrobial resistance (AMR) is a global and continuously raising problem, projected to cause more than 10 million deaths annually by 2050.

Idiopathic pulmonary fibrosis: Uniting European patient voices

For people suffering from IPF, the work of patient associations is crucial as they highlight the urgency for new research and raises awareness of the disease.

The complexities of lymphoma: The importance of subtypes

With more than 90 subtypes, non-Hodgkin lymphoma is a complex group of diseases. Read this article to learn more.

Japan: When lipstick means independence

As rheumatoid arthritis (RA) progresses, joints stiffen and eventually become so badly affected that people with RA become more dependent on others for help to complete daily tasks.

Roche signs agreement with Kenya to improve breast cancer launches

First Lady Margaret Kenyatta, Kenya Ministry of Health and Roche launched key activities that will facilitate access to improved care for patients with breast cancer in Kenya today.

Advancing haemophilia management

Roche is developing novel approaches to hopefully advance the management of haemophilia A.

Unlocking the prediction of preeclampsia

Preeclampisa is a widespread, life-threatening pregnancy complicaton

Unlocking the prediction of Preeclampsia, a widespread pregnancy complication

The value of time for IPF patients

Over 200,000 patients across Europe and the United States have idiopathic pulmonary fibrosis (IPF), an incurable lung disease more deadly than most cancers.

Innovative pricing solutions

We are putting into practice innovative pricing solutions to broaden access to our medicines.

A vision for the future

Find out what being part of the community means to the World Federation of Hemophilia and why World Hemophilia Day is such a critical event.

An online community supporting cancer patients

The Pioneering Healthcare websites now provides a source of information and dedicated support for blood cancer as well as lung cancer.

Clinical trials

Find out how we determine whether new drugs, diagnostics or procedures in the laboratory are both safe and effective when used to diagnose or treat people.

Getting medicines to people with breast cancer sooner

Find out how we are pushing the boundaries of science and creating opportunities to bring medicines to people with breast cancer sooner.

Out of the darkness: Living with MS

Sharing my 40-year story with multiple sclerosis.

Recognising Melanoma Heroes

Many people play heroic roles in treating or living with melanoma, from the patients themselves to caregivers and physicians as well as scientific researchers – who work tirelessly to explore the causes, prevention and treatment of this disease in hopes of finding a cure. Their courage, determination and perseverance is nothing short of remarkable.

Melanoma Hero Don - The Patient

In 2008, 57-year-old Don had what he thought was a simple mosquito bite, only to discover it was something much more serious. This Melanoma Hero has been battling melanoma ever since, as well as raising funds and offering peer support for Melanoma Network Canada.

Argentina: supporting children with juvenile arthritis

Family and friends can play an important role in improving everyday life for children with arthritis.

Pictures of life

Cancer patients capture their lives through photos and win awards at competition in Taiwan.

A personal view on cancer immunotherapy

Pablo Umaña, Head of Cancer Immunotherapy Discovery at Roche Pharma Research and Early Development, shares his insights on how the field of cancer immunotherapy will evolve, why scientists in early research remain mindful of people affected by cancer, and what inspires him to come to work every day.

World Ovarian Cancer Day: action, awareness, solidarity

On May 8th 2015, ovarian cancer organizations worldwide are uniting to educate their communities about ovarian cancer and its symptoms.

Things you may not know about skin cancer

From the origins of the word melanoma to the worrying statistics today, these are some of the interesting facts about skin cancer everyone one needs to know.

Testing newborns for HIV

Newborns at risk of HIV need to be tested quickly. Discover why every day counts and how access to HIV diagnostics are making a difference.

Seeing hope in pictures

Lung cancer patients express themselves through paintings as part of a project started by a cancer specialist in Israel.

Breast cancer: Bonding over a game of golf

They bonded as a team. They had fun on a day out in the sun. Winning and losing wasnt part of the agenda.

Multiple sclerosis: My story

At 29, I was ready to start the next chapter in my life with my fiancé. Little did I know that the new chapter was not as a healthy, happily married man.

Connecting with patients

Recently, new patient banners were installed on buildings across the Genentech campus in South San Francisco.

A warm feeling in Israel

Having undergone radiation therapy daily for five weeks, a breast cancer patient in Jerusalem made a request to her nurse.

Walking the catwalk to raise breast cancer awareness

Montevideos Mercado Agricola (agricultural marketMAM) was an unusual venue for a high-flying event organized by Roche Pharma teams to spread the word about breast cancer and the importance of early detection and prevention.

Support for young cancer patients and their families in Austria

For many patients, a cancer diagnosis triggers an emotional crisis and a great deal of stress for family and relatives. The situation is particularly difficult when children or teenagers and their families are involved.

Helping establish private health insurance in China

Collaboration between Roche and major insurance companies to develop affordable cancer polices which provide appropriate cancer care

Book aims to demystify cancer for children

Naama Zweig is a grandmother. She has three granddaughters and lives in Israel. But she was not content with fading away into retirement. Instead she decided to write a picture book featuring her grandchildren and herself, to explain to children how cancer as an illness impacts an individual (in this case she herself) and how one can be more understanding of their condition even at a very young and impressionable age.