Would you share your health data?
Most patients are willing to share their data to contribute to medical progress, but they want transparency.more
Partnering directly with patients opens up exciting ways to transparently share data and gain access to some of the richest datasets available to researchers.more
Patients can be at risk of sharing too much, especially in Rare diseases. How can patient advocates support innovation but also defend patient privacy?more
Mark Lee & Tim Jaeger discuss the shifting the paradigm of transparency and patient privacy when it comes to datamore
Conversations with people with SMA and their familiesmore
When everyday counts, data makes a meaningful difference for patientsmore
Combining science, partnerships and analytics in the fight against cancer.more