Would you share your health data?
Most patients are willing to share their data to contribute to medical progress, but they want transparency.
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When patients are fully in control of their healthcare data
Partnering directly with patients opens up exciting ways to transparently share data and gain access to some of the richest datasets available to researchers.
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What patients in clinical trials should know about their data
Patients can be at risk of sharing too much, especially in Rare diseases. How can patient advocates support innovation but also defend patient privacy?
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